FREQUENTLY ASKED QUESTIONS
Find answers to common questions about the ODJJ — including how to use the journal and app, where to access different versions, and how it supports diverse communities. Whether you’re just getting started or looking for more ways to use the ODJJ in your care journey, this page is here to help.
General Questions about the ODJJ
1. What is a Circle of Care?
In the ODJJ, we use the term Circle of Care to describe the network of support consisting of a person living with dementia, their family and friends in caregiving roles, and their health and social care providers such as personal support workers, nurses, doctors, and the wider community.
2. Who developed the ODJJ?
The ODJJ was developed by the SE Research Centre supported by funding from the Public Health Agency of Canada and SE Health. The resource was co-designed with caregivers and care providers of people living with dementia and the First Nations and South Asian adaptations involved representatives from each of those communities across Canada.
3. Who can use the ODJJ?
The ODJJ can be used by a person living with dementia, their family/ friends in caregiving roles, and their health and social care providers such as personal support workers, nurses, or doctors.
4. Is there a cost to access/use the ODJJ?
No, the ODJJ is a free to use, publicly available resource funded by the Public Health Agency of Canada and SE Health. The ODJJ is intended to support dementia care at anyone’s convenience.
5. Can multiple caregivers/care providers use the ODJJ for the same person living with dementia?
Yes, either the paper or app version of the ODJJ can be used by all members of a Circle of Care to complete activities, share responses and reflect on the dementia journey together. You can access either here.
6. What kind of information can be shared in the ODJJ?
The ODJJ provides a space to record the following information with the Circle of Care:
- Questions about dementia — symptoms, feelings, role and responsibilities
- Personal information to get to know the rest of the Circle of Care
- Well-being tracking including symptoms, mood, and concerns
- Personal reflections you may have along the journey
- Resources that you can collect along the dementia journey
- Photos and videos — there are multiple areas within the ODJJ where you can add photos.
We recommend that you speak with your Circle of Care to decide which features you would like to use to share information with each other.
7. How often should I update the ODJJ?
We recommend that you speak with your Circle of Care to decide how frequently you will each update different sections of the ODJJ. There is no required frequency of use, feel free to set a schedule that is helpful and meets your needs (e.g. daily, weekly, monthly).
8. I’ve run out of pages in my ODJJ, is there a way to print out more?
Yes, you may print out any of the ODJJ pages from any language and version you would like from our website here.
9. Can I use different formats of the ODJJ, like the paper version and the app, at the same time?
Yes, you can use both formats of the ODJJ if you prefer. For instance, you may use the app’s questions or chat features and then visit our website to print off pages such as the monthly dementia symptom tracker or bi-weekly check-in to fill out by hand.
Questions About Cultural Relevancy
10. What languages is the ODJJ available in?
The paper and app versions of the ODJJ are available in English, French, Hindi and Punjabi.
11. What different versions of the ODJJ exist?
There are three adaptations of the ODJJ: the Generic Version, the First Nations Version, and the South Asian Version.
12. How were the cultural changes for the ODJJ decided and made?
The First Nations Version and South Asian Version of the ODJJ were created in collaboration with people living with dementia, their caregivers, and care providers from First Nations and South Asian communities across Canada. We did this through a series of consultations and workshops to make sure the language, imagery and examples within the ODJJ is culturally safe and relevant.
Questions about the ODJJ Mobile Application
13. What devices is the ODJJ app available on?
The ODJJ is available for download on Android and Apple devices through the Google Play Store and the App Store, respectively.
14. How can I download the ODJJ app?
The ODJJ app is available for download on the Google Play Store and the App Store. You can find the download links over on the following webpage.
15.What are the password requirements for my ODJJ account?
Your ODJJ account password must be at least 7 characters long and include uppercase, lowercase, numeric and special characters. We recommend that you write your password down in a secure location for future reference.
16.What if I forget my password?
You may reset your ODJJ password by following the steps below:
- Select “Forgot Password?” on the log in screen of the ODJJ app
- Enter the email address associated with the ODJJ account you are trying to log into
- Open your inbox, you should have received an email from “Our Dementia Journey Journal” containing a password reset link. Note that this link is only valid for 24 hours.
- Click on the “Password reset” link and enter your new password in the window that opens
- Hit “submit”
- Open the ODJJ app and log into your account using your new password
17. Can someone in my Circle of Care who doesn’t have an email address still sign up for the ODJJ app?
No, an email address is required to create an account and use the app. If you don’t have an email address, you can still use the paper-based ODJJ resource.
18. Do I need to create an ODJJ account for the person living with dementia?
Yes, if you are a caregiver or care provider creating a new Circle of Care, you will need to create a “Person” account on behalf of the person living with dementia using a separate email address to link all of your accounts together. Once your caregiver or care provider account has been invited to the Circle of Care, you can now send out additional invitations through that account.
For step-by-step instructions on setting up your Circle of Care, please see the app set up guide linked here.
19. Who can see my data on the ODJJ app?
Only you and members of your Circle of Care can see your personal information, photos, and entries in the app. No one involved in producing or maintaining the app has access to any of the information that any app user enters. Any information shared within the app is securely and confidentially stored within an SE Health server and will not be visible to anyone at SE Health.
20. If I decide to stop using the ODJJ app, can my data be deleted?
Yes, there is an option to delete your account and all of its data under the main menu of the ODJJ app. If you select to delete your account, all of its content and data will be permanently removed from the ODJJ app servers and can no longer be retrieved by you or anyone in your circle of care.
21. What support is available for ODJJ app users?
The following resources are available to support ODJJ:
Resource | Description |
Read more about the ODJJ and access resources including video tutorials and app set up guides | |
Step-by-step instructions to create an ODJJ account and set up your Circle of Care | |
In-app tutorial videos | Video tutorials within the ODJJ app show you how to use each section. These videos can be accessed from the information page of each section of the app at any time. |
For all other inquiries (e.g., bugs, glitches, or crashes) please email odjj@sehc.com. | |